NICU Support Kit
About...
Pregnancy after loss can be beautiful, but it can also be filled with fear, uncertainty, and extra layers of worry. For families who have experienced stillbirth or infant loss, the joy of a new pregnancy often comes with the added pressure of high-risk appointments, extra testing, early inductions, and, in some cases, time in the Neonatal Intensive Care Unit (NICU). The NICU can feel overwhelming, isolating, and exhausting—every day a delicate balance between hope, fear, and the tiny milestones that matter so much.
We know this because we’ve been there. After loss, every test, every procedure, every sleepless night can reopen old wounds while bringing new anxieties. Families navigating the NICU after a previous loss are walking an emotional tightrope—and they shouldn’t have to do it alone.
That’s why we created the NICU Program/Kit. This thoughtfully prepared support kit is designed to bring comfort, encouragement, and practical care to families during the long, tender days in the NICU. Each kit is carefully curated with items to help parents nurture connection with their baby, honor their journey, and care for themselves in the process. Inside, families might find comforting essentials, a soft swaddle, a keepsake, scripture or encouragement cards, and gentle resources to help guide them through a challenging season.
More than a kit, this is a tangible reminder that you are seen, your baby is cherished, and your story matters. Every item is selected with compassion to hold space for your worries, your hope, and your love.
Supporting Families Through the NICU Journey
No family should have to navigate the NICU alone—especially after the pain of a previous loss. We believe that in these tender, stretching moments, families deserve something tangible to remind them that they are not forgotten.
Through generous donors, sponsors, and supporters, we work to make the NICU Kit available for families in hospitals and through individual requests. Every kit is a way to wrap families in comfort, encouragement, and hope—so they can focus on what matters most: their baby, their love, and their healing.
Our mission with the NICU Support Program is deeply personal. We know what it feels like to face the unknown after loss, to worry for your child’s health, and to spend long days in the hospital wondering what comes next. Every kit, every resource, and every act of support reminds families that even in these most difficult and uncertain moments, they are not alone.
Our NICU Journey...
When we found out we were pregnant again, our hearts held two very real emotions at the exact same time—overwhelming gratitude and overwhelming fear. After losing our daughter at full term, nothing about pregnancy felt safe anymore. There was no milestone that offered relief, no week where we finally exhaled. Eight weeks… the first trimester… the anatomy scan… every appointment felt like stepping into a place where both hope and heartbreak lived. Because when you’ve made it all the way to the finish line before and still didn’t get to bring your baby home, “safe” becomes a word that doesn’t belong to you anymore.
This pregnancy was considered high-risk after our stillbirth, which meant more appointments, extra testing, continuous monitoring, and more time in the very hallways that held our deepest grief. Each visit came with its own wave of anxiety—walking into the same rooms, sitting in the same chairs, passing the same doors where we had once prayed for our daughter’s heartbeat. The added monitoring brought comfort, yes, but it also brought the constant ache of “please, God… let everything be okay.”
Late in pregnancy, a scare with our son led to an early induction—earlier than the early induction we had already requested. It stirred up layers of fear we didn’t even know were still buried. We did everything we could to trust God and cling to His plan, but our hearts were exhausted. All we wanted was to bring this baby home.
And then, after all the waiting and praying, he arrived… only for us to be ushered into a brand-new kind of fear.
Almost immediately, we realized we were facing a NICU journey—again. We had experienced the NICU once before, in a pregnancy prior to our loss, and while that stay was short, the NICU was never an easy place. But after losing our daughter, it became a place that cut even deeper. To watch your newborn be taken from your arms so quickly, to hear the words “he’s having trouble breathing,” to see him rushed away before you can process what’s happening… it is a heartbreak that feels too familiar when you’ve already lived your worst nightmare.
From there began a long, emotional journey inside the NICU—a place where progress is slow, unpredictable, and fragile. One step forward, two steps back. Every day looked different. Some days brought hope; others brought fear right back to the surface. Seeing your tiny, innocent baby hooked up to wires, monitors, breathing support, feeding tubes… hearing alarms and beeps constantly… feeling utterly helpless because all you can do is sit, pray, and hold their little hand—those moments stay with you forever.
And then came one of the hardest moments of all: being discharged without our baby. Walking out of the hospital doors—the same doors we once left empty-handed after losing our daughter—shattered something inside us. It was excruciating. It was triggering. It was every fear we ever had, wrapped into one moment. We had to walk into our home and explain to our children that their baby brother wasn’t coming home yet, that he needed extra help, that we had to keep waiting and praying.
The days that followed were a blur of driving back and forth, taking turns at his bedside, calling for updates, watching monitors, waiting for answers, hoping for improvement, and trying to trust God in the middle of constant uncertainty. Every small setback felt enormous. Every small gain felt like a miracle.
The NICU is its own kind of wilderness—one that parents never expect to walk through, and one that becomes even heavier when you are carrying the weight of previous loss. It is emotional. It is draining. It is holy and heartbreaking all at once. It forces you to surrender, over and over, because you cannot fix anything. You can only show up, love your child fiercely, trust the medical team, and pray with every breath that you will one day carry your baby out of those doors.
Our NICU journey changed us forever. It gave us a new understanding of how vulnerable life is, how strong these babies are, and how deeply families need support when they are living in that world of machines, monitors, and uncertainty. It’s why our NICU Support Program exists—because no family should have to walk that road alone, especially families who are navigating it with the added trauma of loss.
NICU Support for Families
We know the NICU can feel overwhelming—especially for families navigating pregnancy after loss, high-risk pregnancies, or early delivery. Every day can bring fear, uncertainty, and exhaustion, and no family should face it alone.
Through the Caislee NICU Support Program, we provide comfort, encouragement, and practical resources to help families in the NICU—whether that’s a thoughtfully prepared kit, guidance for what to expect, or tools to support emotional and spiritual well-being.
Our hope is that every family feels seen, held, and supported in these tender moments, even when the journey comes suddenly. You are not alone, and we are here to walk with you every step of the way.
Let Us Support You
If you or your baby are in the NICU—or you’re preparing for a high-risk delivery—we would love to walk alongside you. Fill out the form below, and a member of our team will reach out with encouragement, resources, and information about the Caislee NICU Kit.
This is not an application—this is simply a way for us to connect, listen, and provide support during a tender season.
Frequently asked questions
Who can receive a Caislee NICU Kit?
The NICU Kit is intended for families with a baby in the NICU, especially after a previous loss or high-risk pregnancy. Our goal is to support every family who needs comfort and practical resources during this tender season.
Can I request a kit directly?
Yes! Families can connect with us directly via our contact form. We’ll provide support, guidance, and kits whenever possible.
What’s included in the NICU Kit?
Each kit contains thoughtfully chosen items to bring comfort, connection, and encouragement—soft swaddles, keepsakes, scripture or encouragement cards, and practical resources for parents navigating NICU life.
What if a kit isn’t available immediately?
Even if a physical kit isn’t available right away, our team is here to provide guidance, resources, and emotional support so no family feels alone during this journey.
Is this only for families after a previous loss?
While the NICU Kit was inspired by families navigating pregnancy after loss, it is available to any family in need of support during a NICU stay.
How can I get more support?
Through the Caislee NICU Support Program, we offer resources, encouragement, and compassionate guidance for every step of the NICU journey. Fill out our form to connect with our team for more information on what the Caislee Rylin Foundation has to offer.